Oh hey. I just finished my 2nd week back in the office. Commuting 3 days into the city and working from home with @Reesesthedog1 as my assistant 2x a week. I still have to go in for labs a little more frequently as we get my Tacro levels stable. Too high = Toxic vs Too low = Risk for Rejection
FUN.
Read MoreThe plan was to start my morning at clinic then do something “fun” to celebrate. But plans change. There will still be a celebration but it won’t just be about Jack. It will be to celebrate my beautiful grandmother’s life and legacy. She passed away 2 days ago at 92 years young. I am so grateful for all of the wonderful memories we shared and all of the “teachings” over the years.
Read MoreJack and I just celebrated our 8 week anniversary. All relationships take work and I know we are still in the honeymoon phase of things, but I can’t imagine my life without him. See I was literally dying before he came along and he made me feel alive again. All facts. Sometimes I forget how sick I really was - I was just reminiscing with a friend thinking of why I wasn’t present at a party. Oh Yeah - I forgot I was dying. Literally everything was so hard. I know most post kidney transplant recipients need to lose weight due to a combination of dialysis and/or prednisone but I lost too much weight before transplant. I am happy to report that I am up 8lbs. Which doesn’t look like much but I am very happy about it. I am also getting more physical, walking and even doing a little indoor cycling. So once I can start getting back to my strength training and my dead lifts the quality gainz will return.
Read MoreThe point is I am trying to make best use of this time that I have I need to be a little selfish. I can’t do much - so I started focusing on what I can do. I have been reaching out to other Kidney Warriors that are still waiting for transplant to offer words of encouragement and advice. I don’t have all the answers but I know that the main reason I received a transplant is because I was an advocate for my own health. And I was fortunate to have family and friends share the message that I was in need of a kidney transplant.
Read MoreJust about 3 weeks post transplant. Wow. How did that happen. I have been having flashbacks of hospital time. I was so drugged in the hospital on top of recovering from the anesthesia. And my last night in the hospital was really the worst.
Read MoreThat’s what I just told myself out loud. To many of you it may seem like this transplant is happening so fast. But for me, I feel like I have been waiting F O R E V E R. Mostly because I have been feeling crappy for far too long. From the moment I wake up, I already need a nap. Nothing tastes good. Everything tastes like it was drenched in battery acid and sprinkled with blood. I know that sounds very dramatic but there is this constant metallic taste in my mouth that has been amplified these past few weeks.
Read MoreWent yesterday for my pre-op appointment. It was a good eight hours of meeting with different members of my transplant team.
Read MoreLet me tell you all about my newest friend - Chronic Nausea. It started about 2 weeks ago. Woke up to it. Not terrible managed to shower and get dressed for work. But once I got on the train. <UGHHHHHHH> I literally had to get off. Theres no vomiting involved. Just 100% Nausea in its truest form. Ginger-ale. Saltines. Ginger Candy. Herb Remedies. Tried just about everything.
Read MoreSomeone asked me this past week “How do you get a kidney?” and more specifically “How do you ASK for a kidney?” The answer is quite frankly - I don’t know….yet.
Read MoreWHY DO I NEED A KIDNEY? It fell like she was yelling at me but she really wasn’t - she was quite compassionate. But I feel like this is a common thing where someone says something bad has happened and instead of the reaction of how can I help - we want to know WHY.
Read MoreHi. My name is Gisela Delgado and I have kidney disease.
Read MoreBut like in the words on the great Maxine Waters - I am reclaiming my time in 2019.
Read MoreShould I freak out? Maybe.
Read More2018 is going to be about controlling the controllable. I just had my check up and no big surprise but my kidney function in still declining. Slowly. Like real slow.
Read MoreMy biggest fear is getting sick to the point where I don’t feel like myself.
Read MoreSo what's our next step?
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