Time really does fly when you are LIVING. We made spaghetti for dinner tonight. And I had a flash back of the night before transplant - we made spaghetti and my family was throwing the noodles against the wall to confirm “done”. That was 6.1 months ago.
Oh hey. I just finished my 2nd week back in the office. Commuting 3 days into the city and working from home with @Reesesthedog1 as my assistant 2x a week. I still have to go in for labs a little more frequently as we get my Tacro levels stable. Too high = Toxic vs Too low = Risk for Rejection
FUN.
The plan was to start my morning at clinic then do something “fun” to celebrate. But plans change. There will still be a celebration but it won’t just be about Jack. It will be to celebrate my beautiful grandmother’s life and legacy. She passed away 2 days ago at 92 years young. I am so grateful for all of the wonderful memories we shared and all of the “teachings” over the years.
Jack and I just celebrated our 8 week anniversary. All relationships take work and I know we are still in the honeymoon phase of things, but I can’t imagine my life without him. See I was literally dying before he came along and he made me feel alive again. All facts. Sometimes I forget how sick I really was - I was just reminiscing with a friend thinking of why I wasn’t present at a party. Oh Yeah - I forgot I was dying. Literally everything was so hard. I know most post kidney transplant recipients need to lose weight due to a combination of dialysis and/or prednisone but I lost too much weight before transplant. I am happy to report that I am up 8lbs. Which doesn’t look like much but I am very happy about it. I am also getting more physical, walking and even doing a little indoor cycling. So once I can start getting back to my strength training and my dead lifts the quality gainz will return.
The point is I am trying to make best use of this time that I have I need to be a little selfish. I can’t do much - so I started focusing on what I can do. I have been reaching out to other Kidney Warriors that are still waiting for transplant to offer words of encouragement and advice. I don’t have all the answers but I know that the main reason I received a transplant is because I was an advocate for my own health. And I was fortunate to have family and friends share the message that I was in need of a kidney transplant.
Just about 3 weeks post transplant. Wow. How did that happen. I have been having flashbacks of hospital time. I was so drugged in the hospital on top of recovering from the anesthesia. And my last night in the hospital was really the worst.
So it happened. I woke up and now I have 3 Kidneys. Want to know how I got this kidney? Who gave it to me. Too bad…you’ll have to wait for the #KIDNEYFORGISELADOCUMENTARY to come out.
That’s what I just told myself out loud. To many of you it may seem like this transplant is happening so fast. But for me, I feel like I have been waiting F O R E V E R. Mostly because I have been feeling crappy for far too long. From the moment I wake up, I already need a nap. Nothing tastes good. Everything tastes like it was drenched in battery acid and sprinkled with blood. I know that sounds very dramatic but there is this constant metallic taste in my mouth that has been amplified these past few weeks.
Went yesterday for my pre-op appointment. It was a good eight hours of meeting with different members of my transplant team.
It’s the SILENCE that’s a real heart breaker. When someone is asking all the questions but not really sharing with you how they feel about being a living donor. I know living donation sounds scary.
