6.1

Time really does fly when you are LIVING. We made spaghetti for dinner tonight. And I had a flash back of the night before transplant - we made spaghetti and my family was throwing the noodles against the wall to confirm “done”. That was 6.1 months ago.

So the last time I posted was in June and I feel like that was a lifetime ago. Work life quickly turned into “the upside down” and all I could think of was Thank You Jack for coming through and giving the strength to deal with all the $&@#ery 🤫

I had my post transplant biopsy in mid July. The procedure itself was not painful. But the part where they “apply pleasure” felt like the doctor was trying pull Jack out through my belly button. Now here’s the best news that makes it all worth it - there are currently no signs of IgAN in Jack and no new antibodies. Which means we have escaped steroid therapy 🙌🏼🙏🏼💅🏻.

This week I have my 6 month check up with the surgeon. They are not kidding around when they say you need to rebuild your core. I started personal training again last week and it feels great. I can’t wait to start picking things up and putting them down. I have committed to running 🏃🏽‍♀️ a 5K next summer to benefit The IgA Nephropathy Foundation. For those who forgot - I don’t run unless someone is chasing me. Wait I lied. I have been known to do the skip, run in cross walks to catch the light. 😎

I have met so many other IgAN patients in the past few months from all stages of the battle. It’s very clear that there is no standard regular course of treatment. There are quite a few clinical trials to slow down the disease so check out The Kidney Health Getway when you get a second. You gotta be in it to win it 😘