Happy Anniversary
No flowers. No balloons. Definitely no chocolate cake. Just Feels. All of them.
It’s been just about 8 months since my last post. But more importantly it’s been ONE year since I qualified for a kidney transplant.
My kidney function is steadily decreasing at a S L O W pace.
There was a recall on the meds that I have been taking for past 5 years. Should I freak out? Maybe. But I was more freaked out about trying a new medicine. Because just like everything else in life routine creates comfort. Thankfully I have been on the new meds for a few weeks and all seems to be going smoothly.
I did finally get around to making some t-shirts to spread awareness and I should get them early October. Don’t worry - I will post a picture of me in my walking billboard.
I created a public IG account @chronichabichuelas in hopes of spreading more awareness on living donation and also to hopefully find myself a direct match. At this point I think most of my friends and family members have enough information to make an informed decision about becoming a living donor. So now is the time to cast a wider net in hopes of a match.
When you have an auto immune disease its hard for people to recognize that you are sick. So I encourage all of my kidney warriors to actively talk about their symptoms. Many of us are still working full time, hanging out with family and friends - with no obvious “you look sick” vibes. Sometimes the person that has been there for everyone else, needs someone to be there for them. And being there doesn’t mean YOU have to be willing to be a donor. You could be supportive by going to doctor appointments, becoming a KIDNEY CHAMPION, making a diet friendly casserole and even just a quick IRL check in.
Check Ups are happening more frequently now, so I will honestly try to be better about posting. Sorry for ghosting y’all.